Oncology Handbook

Improving the accessibility and usefulness of common care information

Digital Oncology Handbook
Case Study

Information overload. For years, newly diagnosed patients and their families received a large three-ring binder containing hundreds of pages of dense text and few images that covered everything they may need to know about their diagnosis. The binder was comprehensive but overwhelming, expensive to produce, and more importantly, had outgrown its usefulness as patients and their families grew more accustomed to seeking information online.

Despite this emerging level of comfort, there remained a valuable need for a physical artifact that healthcare staff could use to present and discuss common care information, and that patients and their families could have readily available for quick reference when the need arises. 


LiveWell Team

1 Faculty Advisor
1 Fellows
1 Graduate Student
3 Co-Ops

CBDI Team
Multidisciplinary Clinical Team

Oncology Handbook front and back covers and spreadAn adult using the digital version of the oncology handbookChild reading the oncology handbook

PROJECT GOALS

Providing common care information to newly diagnosed patients and their families in formats that better align with their preferences and needs. 

VISUALLY ENGAGING

Sometimes a picture IS worth a thousand words. Take complicated concepts that are currently presented exclusively as text and translate them into images that are more effectively communicative.

COST EFFECTIVE

The binder has become a wasteful use of resources. It’s expensive to produce and the information it contains rarely gets referenced. 

REFERENTIAL

Take the most commonly accessed information and present it so that it’s easily accessible and understandable “at-a-glance.”

BY THE NUMBERS

80
55
03
Percent Savings

The redesigned handbook could be produced at just 20% of the cost of the original binder.

Survey Responses

Former patients and their families were engaged in the process to gain helpful perspective on how the information contained in the original binder was being used and how it might be presented in a more accessible, informative, and useful manner. 

Languages

To accommodate the needs of our growing population of patients and families whose primary language isn’t English, the two handbooks — one designed for the unique needs of our Adolescent and Young Adult patients — are available in English, Spanish, and Arabic. 


What We Did
Interviewing
User Research
Print Design
Layout Design
Medical Design

Pages from the previous oncology binder that was given to patients after their diagnosis
Card sorting activity to help understand the grouping and order of information
Exploration of design styles and order of information to gather feedback from the stakeholders
Further development of the visual design style and exploring different tab divider methods

OUTCOME

An engaging, informative, and easy-to-use handbook containing only the information that you need to know, when you need to know it. 


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The newly designed oncology handbook focuses on only the most commonly referenced content by patients, families, and care managers. Imagery complements text, making the presentation of common care information more engaging, accessible, and understandable, especially for those with lower health literacy. Measuring in at only 5” x 8.5”, the format is more easily transportable, fitting comfortably in a bag or back pocket, making reference to the information more convenient. The result is a more informed patient population at a fraction of the cost. 

Someone using the digital version of the oncology handbook on their phone
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